Thursday, June 25, 2015

Look Where He Brought Me From!

It all started with a headache. I was having them daily for almost a year. It was determined that I 
Taken Dec. 12, 2014 while hospitalized
needed new glasses/contacts for my eyes and the headaches would go away. They didn’t! I shelved the idea of returning to the doctor because I had other health issues (that at the time I didn’t know was related to the headaches), my mother’s diagnosis of dementia, and her transition from my home to a nursing facility to deal with (which was not going well), so I suffered in silence for another year. Everything came to a head Dec. 10, 2014 when I was hospitalized after having I had a grand mal seizure. The next day I would be diagnosed with a Brain Tumor and then suffer from Facial Palsy, paralysis to the left side of my face. From this day forward, life for me has drastically changed.


Although I don’t have full function of my face, I have come a long way. It’s not as difficult to talk as it was at the onset of the palsy. My face is not as crooked anymore and I can once again smile. However, I still have to tape my eye shut at night to prevent dryness while I sleep. I continue to use a straw when drinking beverages. I still have difficulty chewing.

As I look at this picture of me from December, I thank God for bringing me thus far. I may not be where I want to be, but I’m grateful I’m not where I use to be --- with my face and with my life!

Tuesday, June 16, 2015

Not feeling good

This has been a pretty rough few weeks. Costochondritis is a beast. The pain is unbelievable. After
Last Sunday's Photo Shoot. I don't look like what I'm going through!
finally getting the treatment meds needed, my pain level has decreased from BEYOND MISERABLE to MISERABLE to currently REALLY BAD!  It may take a few weeks for the rib pain to stop, and then it may return. UGGGGHH!!! Neurosarcoidosis attacks the body, joints, and vital organs.

 
With all of the pain, I did muster up the strength to attend Sunday School and visit my mom last Sunday. Being able to minister is very important to me. It is helping to keep me sane! By the time I got to my mom I was so fatigued and in pain that I couldn’t stay long. I am, however, glad I pressed on to visit her. She was in a good mood.
 
The shots I had last week doesn’t seem to be working. Oh, boy! This is not what I had been praying for. I have a doctor’s appointment this coming Friday with my neurologist who hopefully can give some insight on what may be the next step.
 
I did manage to wash dishes today. It took two days (stacked them one day, washed the next), but I was determined to finish up the task myself.
 
I’ve pretty much been in bed the last few weeks. My addiction to Court television shows is getting really bad. I was  watching “The Hot Bench” and found myself so drawn in that I actually said out loud, “I’ve heard enough. I’m ready to rule.“  LOL!  I have got to get a life!

Wednesday, June 10, 2015

It's me, it's me, it's me O Lord! I got something else for you to handle.

So much has happened since my last entry. This illness is trying to get the best of me!
Feeling Blah but still have something to smile about!

Monday I had injections to help with the pain from my bulging disc and muscle spasms. I haven’t had spasms since, however I am still sore and stiff from the injections. This pain should be leaving soon.
 
Last Thursday, I started having severe pains in my left ribs just below my breast. This is the fourth time I’ve experienced pain in this area, however never has it been this excruciating! The pain mimicked that of a heart attack. I didn’t panic, and pretty much took it like a big girl! By Saturday I was contemplating going to the hospital because it became too difficult and painful to get out of the bed. Sunday, I went to Sunday School but not worship services. That was about all I could do. I noticed Sunday afternoon that I had excessive swelling in the area of the pain.
 
A good friend who happens to be a physician told me what to do to help with the inflammation. Because she is a cardiologist and asked several rule out questions, I was relieved that she too didn’t believe my heart was the problem.  After some research, I pretty much knew what the problem was, but was going to wait until my Monday doctor’s visit. After an examination, the doctor diagnosed me with having Coostochondritis. A description from the Mayo Clinic:
  • Costochondritis (kos-toe-kon-DRY-tis) is an inflammation of the cartilage that connects a rib to the breastbone (sternum). Costochondritis is sometimes known as chest wall pain, costosternal syndrome or costosternal chondrodynia. Sometimes, swelling accompanies the pain (Tietze syndrome).
  • Costochondritis usually has no apparent cause. Treatment focuses on easing your pain while you wait for the condition to improve on its own, which can take several weeks or longer. Costochondritis usually goes away on its own, although it might last for several weeks or longer. Treatment focuses on pain relief.
Although there is no real cause for Costochondritis, it can be brought on by a tumor or sarcoidosis, both of which I have. Neurosarcoidosis is no joke! Just another thing to give to the Lord. I’ve pretty much have been in the bed since Thursday. Today I am attempting to cook my family a home cooked meal.

It is well with my soul! God be glorified!

Roline