It Ain't Over

It’s been several days  since I have written. I have been super busy with this healing process. The good news is I am getting better! YAY ME! I’m still somewhat weak and in recovery, but, under the therapist suggestions, I am acclimating myself back to normal. I have done things like cook, do laundry, and even went to Wal-Mart. Yes I had to ride the handi-mobile, but I did it while singing “Bad to the Bone” and “Born to Be Wild!” Don’t judge me!

What’s huge for me is the fact that I can walk and have movement in my toes! I use the walker when I am home alone or when I go out in public. There is a risk of me falling. But when someone is home, I walk without assistance. THANK YOU LORD!

 

Hair loss is even greater than before. I have a huge balding area at the top front of my head. This is a good excuse to buy more scarves, hats, & wigs. Currently I have a wig on to see how long I can have it on my head and if it will agitate my incision area.

It has taken me this long to share my diagnosis with you because yesterday, I finally got the concentration, and courage to read up on my illness. I was diagnosed with Granulomatous Disease or Neurosarcoidosis which is a rare disease that affects the central nervous system and /or cranial nerves. The disease is the reason behind the loss of muscle function to the left side of my face.  I must be treated for this disease. Some of the tumor is still taking residence on my brain. I will find out on Feb. 20^th what method of treatment will be taken. So this journey is not quite over. But, through it all, IT IS WELL WITH MY SOUL!!! To God Be The Glory!



Me & Cat. Crooked Face, Crooked Tongue. LOL!

Yesterday, Cat came home in between her classes just to spend time with me. My ladybaby has been such a help and  blessing to me.  We took a few selfies and I discovered, if you have a crooked face, sticking your tongue out is going to be crooked too. LOL! TUMOR HUMOR!!